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Tuesday May 31, 2022

Episode 13 - A Mental Health Awareness Week Special with Dr Ashley Perkins
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Joel vs Arthritis

Joel vs Arthritis

On a mission to raise awareness and improve support for those living with arthritis, autoimmune disease and chronic pain by sharing the realities of living with chronic illness - Brought to you by Award-Winning Arthritis and Psoriasis Patient Leader, Writer and Ambassador, Joel Nelson. He shares his no-filter story of Psoriasis and Juvenile Idiopathic Arthritis to start conversations and change attitudes.

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Joel Nelson
(aka 'Joel vs Arthritis')

Award-Winning Arthritis and Psoriasis Patient Leader, Writer, Content Creator and 'Lived Experience' Consultant

Joel is a passionate psoriatic disease and arthritis advocate who uses his story to inspire change.

With the onset of inflammatory arthritis at just 10 years old and skin manifestations of psoriatic disease in his 20s, Joel has experienced psoriatic disease's physical, aesthetic, and mental health impacts for most of his life.

In his early 30s, he decided to raise his voice and harness his experience to help others. He campaigns actively for awareness and change, focusing on psoriatic disease, juvenile idiopathic arthritis, chronic pain and mental health. His goal is to stop the stigma around these diseases and help others feel less alone.

Joel is a published writer and hosts a podcast and Twitch channel under the banner of 'Joel vs Arthritis', where he talks about the realities of living with chronic illness and pain, building a growing community of support around the world through his candid, 'no-filter' approach.

Joel is based in Norfolk, UK, where he lives with his wife and young son.

Find out more: https://linktr.ee/Joelvsarthritis 

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Notable Roles, Titles and Awards

  • Community Advocate and Freelance Writer for Health Union
  • IFPA International Psoriatic Disease Ambassador
  • NRAS Rheum for Inclusion Advisory Board Member
  • Patient Ambassador for Ampersand Health
  • Ambassador for WORD Day
  • Owner of The Pain Company
  • Nominated for 8 Categories in the 2021 WEGO Health Awards
  • Winner of 2021 'Best in Show: Facebook' WEGO Health Award
  • Member of the Health Union Patient Leadership Council 2022-23

For socials, content and more information: https://linktr.ee/Joelvsarthritis 

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Services

Joel has helped many organisations and non-profits identify and understand the patient journey, pain points and amplify the voice and importance of lived experience in healthcare and policymaking at every step of the process.

Just some of the ways Joel's patient expertise can help you and your organisation, and the services provided include:

  • Freelance Writing
  • Event and Charity Ambassador/Advocacy Roles
  • Non-profit Trustee Positions
  • Focus Groups and Patient Advisory Boards (providing lived experience and patient expertise)
  • Literature and Campaign Messaging Review
  • Media Appearances as a Patient Expert (TV, Print & Radio/Podcast Interviews)
  • Awareness Campaign Championing
  • Patient Lived Experience Consultancy
  • Pharmaceutical Project Feedback & Patient Experience Consultancy
  • App Development: Product Patient Usability Testing
  • Event Hosting and Public Speaking

To discuss your requirements, get a quote, permission to use his content or find out more about how Joel can help you, get in touch: https://linktr.ee/Joelvsarthritis 

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The Pain Company

In pain together

Founded by Joel, The Pain Company exists to raise awareness of chronic pain and illness - to give a voice to the millions living with daily, relentless pain.

Created by people in pain for those in pain

Designed to be stylish, a conversation starter and always organic and sustainable, we hope you wear our products with pride. Whether you live with chronic pain, support somebody who does or simply love our clothing and wants to support our work - we are in pain together.

The sustainable choice

We design our garments to be gentle on your joints and skin, and that's why they are made from 100% super-soft organic cotton. Our materials are ethically sourced, printed in a green-powered factory in the UK, and shipped in plastic-free packaging, delivering our brand's sustainable and carbon-neutral model.

Shop here: https://pain.company 

Episodes

Episodes

Episode 12 - WORD Day Special - Part 2 with Rebecca Beesley of Juvenile Arthritis ResearchImageImage

Wednesday Apr 27, 2022

Episode 12 - WORD Day Special - Part 2 with Rebecca Beesley of Juvenile Arthritis Research

Wednesday Apr 27, 2022

World yOung Rheumatic Diseases Day (WORD Day) is an annual event on 18th March to raise awareness that children and young people get rheumatic diseases. On Saturday the 19th March, Joel hosted an 8-hour marathon stream on his Twitch Channel to raise awareness of WORD Day 2022 and rheumatic disease in children and raise funds in aid of Juvenile Arthritis Research https://www.jarproject.org. In this second part of three special interviews hosted on the day, Joel talks to JIA patient, parent, volunteer at Juvenile Arthritis Research and all-around inspirational friend Rebecca Beesley about her work and JIA journey as both a patient and a mum. SHOW NOTES Joel on Twitch Donate to WORD Day/JAR Project Fundraiser To request a free support pack (UK only): www.jarproject.org/hope To read more about JIA: www.jarproject.org/myjia Web resources for younger children: www.jarproject.org/kipo Web resources for teens and older children: www.jarproject.org/teen To request a free School Toolkit (UK only, must be requested by the school/educational setting itself): www.jarproject.org/toolkit To find out more about our resources overall: www.jarproject.org/journey And Sophie's story that we mentioned in the interview: www.jarproject.org/stories/sophie If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 11 - WORD Day Special - Part 1 with Ali DaggettImageImage

Sunday Mar 20, 2022

Episode 11 - WORD Day Special - Part 1 with Ali Daggett

Sunday Mar 20, 2022

World yOung Rheumatic Diseases Day (WORD Day) is an annual event on 18th March to raise awareness that children and young people get rheumatic diseases. On Saturday the 19th March, Joel hosted an 8-hour marathon stream on his Twitch Channel to raise awareness of WORD Day 2022 and rheumatic disease in children and raise funds in aid of Juvenile Arthritis Research https://www.jarproject.org. In this first part of three special interviews hosted on the day, Joel talks to friend, blogger and advocate Ali Daggett, about her diagnosis journey, the Chronically Connected project and why she shares her story. SHOW NOTES Joel on Twitch Donate to WORD Day/JAR Project Fundraiser Ali Daggett on Instagram Chronically Connected Under Young Skin Blog If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 10 - Has Covid Changed Our Care?ImageImage

Sunday Jan 16, 2022

Episode 10 - Has Covid Changed Our Care?

Sunday Jan 16, 2022

Has the Covid pandemic impacted the care we receive for our arthritis or chronic illness? In this 'round table' chat, full of insight, lived experience and heartbreak, we discuss the experiences of Jacyln, Safia and Ashleigh to understand how their 'normal' care has changed over the last two years. From lifelong conditions to the recently diagnosed, we take a sample of stories from across the country to get a snapshot of how treatments and appointments may have been impacted, what shielding was like and how Covid-19 has changed the perception of chronic illness and disability. You can also contribute to this episode by completing a survey HERE to share your experiences during the pandemic. As discussed in the show, we will be using this data to start honest conversations with decision-makers, so your voice makes a difference! SHOW NOTES The Pandemic and your Care Survey Jaclyn Fielden on Instagram (@jaclynleefielden) Safia Awil on Instagram (@snapkrackleandpop) Ashleigh Clarke on Instagram (@ashleighclarke2112) If you've enjoyed this podcast, please don't forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) THE PAIN COMPANY The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 9 - Debbie Wilson, JIA and NRASImageImage

Wednesday Dec 29, 2021

Episode 9 - Debbie Wilson, JIA and NRAS

Wednesday Dec 29, 2021

In the latest episode of the podcast, the first to be streamed live over on Twitch, we welcome Debbie Wilson, Young Persons Project Co-ordinator at the National Rheumatoid Arthritis Society (NRAS). We talk about life with Juvenile Idiopathic Arthritis, the challenges of being a parent of a young person with JIA and all of the incredible work Debbie is currently involved with at NRAS. Show Notes NRAS Website JIA at NRAS If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 8 – World Arthritis Day Special – 24hrs with ArthritisImageImage

Monday Oct 25, 2021

Episode 8 – World Arthritis Day Special – 24hrs with Arthritis

Monday Oct 25, 2021

In this special Podcast episode for World Arthritis Day 2021, I document a day in the life of somebody with arthritis - sharing my routines, the management of my condition and talking about the raw, unseen side of arthritis and the suffering that goes on behind closed doors. I also answer some of the questions you sent in on the day.   If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 7 – Suruthi’s Story and #WearPurpleforJIAImageImage

Tuesday Jun 15, 2021

Episode 7 – Suruthi’s Story and #WearPurpleforJIA

Tuesday Jun 15, 2021

In this special episode for #WearPurpleforJIA, we are joined by Suruthi Gnanenthiran of @fightrheumatoidarthritis on Instagram, who shares her story of JIA from the age of 3 and also talks about her awareness work and the importance of NRAS's campaign this week to raise awareness of JIA.   If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 6 – Living with Psoriasis ft. Lucy ChambersImageImage

Monday Jun 07, 2021

Episode 6 – Living with Psoriasis ft. Lucy Chambers

Monday Jun 07, 2021

After a short break due to health reasons, Joel is back with another insightful episode of the Joel vs Arthritis podcast. In this instalment, we are joined by the wonderful Lucy Chambers, who has had psoriasis since childhood.   If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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Episode 5 – JAR Project and WORD DayImageImage

Tuesday Mar 16, 2021

Episode 5 – JAR Project and WORD Day

Tuesday Mar 16, 2021

In this special edition of the Joel vs Arthritis podcast, Joel is joined by Rebecca Beesley of the charity Juvenile Arthritis Research. They discuss the amazing work JAR Project does and their plans for WORD Day 2021 on 18th March.   If you’ve enjoyed this podcast, please don’t forget to subscribe on whatever platform you are listening to this on, leave a review and send me your comments and feedback via email. It helps massively and allows me to improve future content and episodes. Follow me on social media for daily news and awareness stories. Get in touch with me at: Twitter: @joelvsarthritisFacebook: facebook.com/joelvsarthritisInstagram: @joelvsarthritisTwitch: /joelvsarthritisWebsite: https://joelvsarthritis.co.ukFacebook private support groups: Arthritis and Autoimmune Support Group & Chronic Pain Club. Quick Reference Links (Linktree) The Pain Company The Pain Company was created to raise awareness of chronic pain and illness. To give a voice to the millions living with daily, relentless pain. Shop here.

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