The Joel Nelson Podcast
Your Story Matters. We raise awareness for those living with chronic illness, pain, and associated mental health challenges by providing a platform to share their stories. Their unfiltered reality. Hosted by award-winning Patient Advocate and lived Experience Champion Joel Nelson, weekly on Sunday evenings from 7pm (GMT) in front of a LIVE audience on our YouTube Channel here: https://youtube.com/joelvsarthritis.
Episodes
Episodes
Monday Oct 14, 2024
Patient and Public Involvement in Research (QUICK and iPREPARE Studies)
Monday Oct 14, 2024
Monday Oct 14, 2024
On this episode, we're incredibly excited to have Martin Stevens, a Research Fellow at the Aberdeen Centre for Arthritis and Musculoskeletal Health at the University of Aberdeen, join us.
Hear us discuss his focus on patient and public involvement in research, why this is important, and what he is currently working on to improve patient outcomes.
We talk about the iPRePaRe Study, which explores how patient research partner engagement is implemented in research, and his involvement in the QUICK study, which aims to help quantify chronic pain's impact on engagement in paid work by creating a means to measure it.
These are vitally important topics and ones that regularly feature on the show when we share people's lived experiences with chronic illness, so we are grateful to get a researcher's insight into the ongoing work around these burdens of our disease(s).
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: Twitter/X: https://x.com/MartjStevens
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
Tuesday Sep 10, 2024
Tuesday Sep 10, 2024
In the second of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.
Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.
In part two, we dive into why Heather plays games like Minecraft to distract themself and cope with the realities of living with multiple chronic illnesses and how they put their unique twist on it by linking it to their love of history.
Listen to hear a novel and alternative way to manage your pain.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplaysTwitch: https://www.twitch.tv/archaeoplaysInstagram: https://www.instagram.com/archaeoplays/
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX.All Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
Friday Sep 06, 2024
Gaming and Chronic Illness with ArchaeoPlays | Heather’s Story | Part 1
Friday Sep 06, 2024
Friday Sep 06, 2024
In the first of this two-part special, we are joined by Heather Christie, aka ArchaeoPlays - an archaeologist, content creator, and gamer.
Heather delves into the past on their Twitch and YouTube channels, where they unearth hidden connections between video games and the ancient world. But their real-life adventure is even more intriguing as they navigate the challenges of living with multiple chronic illnesses, including endometriosis, adenomyosis, PCOS, IBS, interstitial cystitis, and chronic pain.
In two episodes recorded in front of a live audience on the Chronic Pain Club Talk Show, Heather first shares with us their story of chronic illness before, in part two, we dive into why they play games like Minecraft to distract and cope with the realities of living with these, and how they put their unique twist on it by linking it to their love of history.
Check out this episode for our usual lived experience story, but come back for Part 2 to hear a novel and alternative way to manage your pain.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: YouTube: https://www.youtube.com/@archaeoplaysTwitch: https://www.twitch.tv/archaeoplaysInstagram: https://www.instagram.com/archaeoplays/
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
Tuesday Aug 13, 2024
Moving with RA - From Advocate to App with Ali DiGiacomo | 50th Episode!
Tuesday Aug 13, 2024
Tuesday Aug 13, 2024
For the 50th episode of the Joel Nelson Podcast, we are joined by the fabulous Ali DiGiacomo!
Diagnosed with Juvenile Idiopathic Arthritis at 15 and then hit with severe Rheumatoid Arthritis at 22, Ali went from competitive swimming to giving up fitness entirely. But a decade later, she decided to fight back, one workout at a time.
Whether you're struggling with chronic pain, looking for a fresh perspective on fitness, or simply in need of a dose of inspiration, Ali's RA story is a must-listen.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: Instagram: https://instagram.com/AnotherDayWithRA TikTok: https://tiktok.com/@AnotherDayWithRA
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
Friday Jul 19, 2024
Being a Disabled Nurse in the UK
Friday Jul 19, 2024
Friday Jul 19, 2024
In this episode, we are joined by Chloë Hammond, a trailblazing clinical nurse who is breaking down barriers in the healthcare industry, and her amazing assistance dog, Ocho.
Despite being a wheelchair user and an assistance dog owner after being diagnosed with a rare disease at the age of 15, Chloë thrives in her role as one of the few disabled nurses in the UK.
In this episode, we'll explore Chloë's unique journey as a nurse with a disability, the importance of assistance dogs, how Ocho enhances Chloë's life, and the shockingly low representation of disabled individuals in the healthcare workforce and what needs to change.
This engaging conversation will challenge your perspective, ignite inspiration, and leave you with valuable insights on disability inclusion and achieving dreams despite adversity.
If you enjoyed this episode, please remember to leave a review and subscribe wherever you listen to help more people find our peer support community. <3
Follow our GUEST: Instagram: https://instagram.com/wheelie.nurse.with.a.dog & https://instagram.com/watchochogrow
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritisTwitch: https://twitch.tv/joelvsarthritisTikTok: https://www.tiktok.com/@joelvsarthritis Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcXAll Links: https://linktr.ee/JoelvsarthritisWatch The Chronic Pain Club Talk Show and these interviews LIVE on YouTube and join the conversation!DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.Music Credit: Buffon – by Gideon Murray
Friday Jun 14, 2024
Day 3 in Vienna | EULAR 2024 Special
Friday Jun 14, 2024
Friday Jun 14, 2024
On Day Three of the EULAR Congress in Vienna, we have a bumper episode for you as the podcast series becomes a talking point of the conference!
In this episode, you will hear from:
Raquel Vaz, Scientific Project Leader at IFPA
Paul Studenic, Researcher and Rheumatologist at Medical University of Vienna
Rebecca Beesley, Volunteer at Juvenile Arthritis Research (JAR Project)
Souzi Makri, Past Chair of EULAR PARE and Vice President of the Cyprus League for People with Rheumatism
Katy Antonopoulou, PARE Committee Member and President of Sjogren’s Europe
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Friday Jun 14, 2024
Day 2 in Vienna | EULAR 2024 Special
Friday Jun 14, 2024
Friday Jun 14, 2024
We are putting the patient voice into the EULAR conversation on Day 2 of the Congress as we are joined by Andreas Dam, developer of the RheumaBuddy app, and award-winning patient advocate and Chair-elect of the EULAR PARE Committee, Dr. Simon Stones.
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Wednesday Jun 12, 2024
Day 1 in Vienna | EULAR 2024 Special
Wednesday Jun 12, 2024
Wednesday Jun 12, 2024
As we record LIVE from EULAR 2024 on IFPA’s booth to raise awareness of psoriatic disease and the Good Care for PsA project, we speak to some brilliant guests as the Congress heats up.
In this episode, you will hear from Ingvar Ingvarsson, Vice President of IFPA, Zoë Clark, Programme Manager at NASS, and Loreto Carmona, Rheumatologist, Epidemiologist, and EULAR Advocacy Chair. We talk about their hopes, plans, and work at Europe’s largest Rheumatology gathering.
You can find us all week at Booth O22. Join us and share your great work to be part of this special podcast series recorded live and on location in Vienna.
For more information about the Good Care for PsA project: See here.
Follow the HOST:Instagram: https://instagram.com/joelvsarthritis Facebook: https://www.facebook.com/joelvsarthritis Twitter/X: https://twitter.com/joelvsarthritis Twitch: https://twitch.tv/joelvsarthritis TikTok: https://www.tiktok.com/@joelvsarthritis
Join our Online Peer Support Community and Discord server here: https://discord.com/invite/dUean4vDcX All Links: https://linktr.ee/Joelvsarthritis
DISCLAIMER: Please note that the host of this podcast and its producers are in no way medically trained and do not claim to be. On this show, we share the lived experiences of others - their story is their own, and we cannot be held responsible for their views or recommendations. Everyone is unique - what works for one person may not work for another. Always consult your medical professionals.
Music Credit: Buffon – by Gideon Murray
Your Host
Joel Nelson is an award-winning patient advocate, published writer and international speaker.
Alongside this Podcast, he hosts a Twitch and YouTube channel where he talks about living with chronic illness and pain.
Joel uses his own experience with chronic illness, pain, and associated mental health challenges to inspire change, educate and reduce stigma while helping others feel less alone.
He has built a growing global community of peer support through his candid, 'no-filter' approach and is known for the creative ways he strives to 'meet patients where they are' and raise awareness.
Joel lives in Norfolk, UK, with his wife and young son.
If you want to learn more about Joel's work or discuss sponsorship opportunities, you can visit joelnelson.uk.