It’s been a bit negative of late, hasn’t it? The poems, the lack of progress with my treatment. You can only write about what you know and at the minute it’s a bit of a sh*t sandwich but even the bread is mouldy.

I started this blog to raise awareness, be positive and show what can be achieved despite disabilities but I’m not inspiring anyone at the moment – time for that to change!

I work best when I have a goal, something to work towards and for 2020 I have nothing to aim at so I need your help and suggestions so that I can put something in place and start focusing on the positive again; get my fight back. In 2019 I rode RideLondon 100 for Cancer Research UK, in 2017 the Great North Run half marathon for Arthritis Research UK, in the 2015 Run Norwich for Nelson Journey etc. I’ve probably bored everyone to death with fundraising in recent years, however, so another charity effort is probably not a good idea – therefore, it needs to be a challenge for me, a personal accomplishment.

Running is out of the question now, although I’m hopeful I can cycle again when the weather warms up, walking is certainly doable whilst still being a hell of a challenge given the discomfort I’m in. I’ve been toying with the idea of walking the coast or circumference of my home county of Norfolk, or perhaps a rowing machine challenge, something low impact but significant.

Let me know your ideas but I’ll say now, nothing to do with heights, jumping out of planes etc. Firstly, it needs to be a physical challenge to show what the disabled body can do (like cycling 100 miles in one day like I did last year) and I’ve been through enough, without putting me through my ultimate fear! 😉

I look forward to your ideas.

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Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.

I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.

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