Preparing for the Biologics appointment

Next week I have my first appointment with the Biologics team since the switchback to Humira. Usually a routine six-monthly check up but the significance of this one is that it’s three months since I restarted on Humira – and three months is the period in which you are told to expect to see a…

I used to be

I used to be fit, I used to be strong, I used to be witty and happy; belong. I used to be driven, oh, to be enthused, I used to entertain and sing; amuse. I used to be healthy, I used to have fun, I used to compete, be agile and run. I used to…

Without sleep

It’s four in the morning and I’m still not asleep,The aching’s too much, from my neck to my feet.Resenting all the hours that I lay here in bed,I could change the world with the time I have spent. It’s five in the morning and I’m begging for rest,My head is now full with the worry…

I am…pain.

I am strong, until I’m not,I am cold but my joints burn hot. I am happy, on the surface,I am not fit but for what purpose? I can love, but not myself,Not yet dying but don’t have my health. I am travelling but in one direction,Followed by shadows, devoid of reflection. Short on temper but…

Processing the feedback from the Pain Management Clinic

Background reading: Preparing for the Pain Management Clinic Some of you kind folks have been dropping me messages about how I got on at the pain management clinic; firstly, thank you and secondly apologies for the delay in writing an update from last week’s appointment, it didn’t exactly go as I hoped and I needed…

My Top 15 motivational songs to kick chronic pain’s ass!

Being in pain sucks. Its tiring, makes the days and nights long and if you’re like me, you are much more likely to be short tempered or grumpy with loved ones when in pain. Therefore, if you’re looking for a pick-me-up or something to break the dark clouds when pain is getting you down, I…

Preparing for the Pain Management Clinic

I am nervous but I don’t think it’s fair that I should be. I’ve been pushing for help dealing with the pain for months now. The worst thing about this flare, the one that’s been raging a year now, is that I have been offered zero support compared to previous experiences. No physio, no hydro,…

Everyone sleeps except me

Okay, so I don’t know if this is going to become ‘a thing’ or not but my last post where I wrote a poem (for the first time in about 20 years!) became, within 24hrs, the most popular post I’ve written in the month-old life of this blog! Considering it is still very early days…

How do you manage chronic pain or a flare?

More often than not, pain is part of everyday life when living with an auto immune disorder. Your body is essentially attacking itself and on some days you better belive it’s going to remind you of that. I am currently going through one of those spells and in the spirit of what I set this…