Chronic illness – a setback bigger than the illness itself

You might think you are helping by taking things away from me but you’re not. You are further knocking the confidence of somebody who is already fragile from their chronic illness. An event happened to me today that reminded me of something worse than living with chronic illness itself. The issue of people thinking they…

Unknown, yet shown

‘Oh, I see you’re limping away?’ *awkward pause as they wait for me to say* ‘How are you? You’re looking well?’ I deflect back, you don’t know my hell. Confused, they’re thrown. No gossip? Poor show. ‘What’s wrong?’, their patience expires. ‘Oh, just this long term thing’. I retire.

I used to be

I used to be fit, I used to be strong, I used to be witty and happy; belong. I used to be driven, oh, to be enthused, I used to entertain and sing; amuse. I used to be healthy, I used to have fun, I used to compete, be agile and run. I used to…

Time to turn the corner – and I need your help!

It’s been a bit negative of late, hasn’t it? The poems, the lack of progress with my treatment. You can only write about what you know and at the minute it’s a bit of a sh*t sandwich but even the bread is mouldy. I started this blog to raise awareness, be positive and show what…

What3words – the app that could save your life after a fall

Here in the UK, the police and other emergency services have been promoting the What3words app to enable you to tell them exactly where you are in an emergency. If you haven’t heard of this app, I’m going to tell you why it could be lifesaving, especially if suffering from a chronic autoimmune condition, limited…