Living with disability feels like living with a constant sense of loss, mortality and, in a way, mid-life crisis. A recent Netflix documentary made me realise what I had to let go.
What does it feel like to be sick during a global pandemic? When everyone is helping, your arthritis makes you feel more like a burden.
Living with arthritis is tough, being a parent is equally as challenging but pain and parenting is a very difficult combination.
I am delighted to say that an article I wrote for the National Axial Spondyloarthritis Society (NASS) has been published in their Spring 2020 magazine.
A poem about how physical disability impacts you reaching your goals.
Thursday 19th March, a day that will long live with me. I was walking my dog on a grey, chilly morning. Still carrying the limp on my right leg from the pain which had kept me off work the last four weeks; I received a phone call. It was my […]
As Britain adjusts to life in lockdown, an opportunity to empathise with the disabled presents itself
You might think you are helping by taking things away from me but you’re not. You are further knocking the confidence of somebody who is already fragile from their chronic illness. An event happened to me today that reminded me of something worse than living with chronic illness itself. The […]
‘Oh, I see you’re limping away?’ *awkward pause as they wait for me to say* ‘How are you? You’re looking well?’ I deflect back, you don’t know my hell. Confused, they’re thrown. No gossip? Poor show. ‘What’s wrong?’, their patience expires. ‘Oh, just this long term thing’. I retire.
Trouble on the horizon Today was not a good day. As some of you know, I had my biologics review as it has been three months since the recommencement of Humira. You may also know that Humira has not really been working this time around, which made me somewhat apprehensive […]