Everything gets attributed to your autoimmune condition when you're sick

Living with an autoimmune disease isn’t easy. When your own body attacks itself, in my case, the fight can start anywhere. Over the years I’ve had it in my joints, liver, eyes, skin and muscle damage and depending on where it is, is what it’s called; arthritis, fatty liver, uveitis, psoriasis and myositis in the…

My top 7 tips for those newly diagnosed with arthritis

Any new diagnosis requires a period of adjustment, time to come to terms with the implications and a good support network around you – however, arthritis is particularly challenging. The chances are it’s a condition you have to manage for the rest of your life, dealing with pain along with potential mobility issues and any…

Preparing for the Pain Management Clinic

I am nervous but I don’t think it’s fair that I should be. I’ve been pushing for help dealing with the pain for months now. The worst thing about this flare, the one that’s been raging a year now, is that I have been offered zero support compared to previous experiences. No physio, no hydro,…

I am done

This is a poem that I’ve had in my drafts for some time. As you can tell, I was quite angry and frustrated when I wrote this and it is darker than it probably should be but I thought I should share as the message is an important one. In conversation with other people facing…

What3words – the app that could save your life after a fall

Here in the UK, the police and other emergency services have been promoting the What3words app to enable you to tell them exactly where you are in an emergency. If you haven’t heard of this app, I’m going to tell you why it could be lifesaving, especially if suffering from a chronic autoimmune condition, limited…

It’s ok to be not ok

It’s a tough time of year for a lot of people behind all the celebrations and cheer. Family and financial pressures can be at their highest point of the year and if you are struggling with low mood, depression or anxiety the thought alone of all the social commitments, gatherings, work do’s and getting the…

Chronic fatigue and still no answers – how do you manage?

So today is the eve of my second attempt of returning to work – however, I still have no concrete answers as to what caused my multiple infections or what is behind this fatigue, the like of which I have never experienced before. Some of the topics discussed in this post follow on from a…

How do you deal with being off work due to poor health?

At what should be a time for rest and recovery, do you put more pressure on yourself than your employer? Living with a chronic illness, you would have at some point needed some time off work. Whether that be due to treatment, a flare, hospitalisation or simply to rest. Perhaps it is just me and…