Living with an autoimmune disease isn’t easy. When your own body attacks itself, in my case, the fight can start anywhere. Over the years I’ve had it in my joints, liver, eyes, skin and muscle damage and depending on where it is, is what it’s called; arthritis, fatty liver, uveitis, psoriasis and myositis in the…
Tag: chronic fatigue
An upsetting post to write – an update from the Biologics appointment
This post is preceded by: Preparing for the Biologics appointment Trouble on the horizon Today was not a good day. As some of you know, I had my biologics review as it has been three months since the recommencement of Humira. You may also know that Humira has not really been working this time around,…
A poem about how I feel right now
As some of you know, I’ve been experiencing some brand new symptoms of late that are really getting me down, multiple infections, crippling fatigue, all over joint pain and night sweats to name but a few. After recently reading Lindsay Reid’s poetry based on her experiences living with Ankylosing Spondylitis (available here: https://www.redsquirrelpress.com/product-page/my-dark-guardians-lindsay-reid) it made…
Chronic fatigue and still no answers – how do you manage?
So today is the eve of my second attempt of returning to work – however, I still have no concrete answers as to what caused my multiple infections or what is behind this fatigue, the like of which I have never experienced before. Some of the topics discussed in this post follow on from a…
