I came across this really interesting article in The Metro regarding the stigma associated with Arthritis in young people and what it’s like to live with an invisible disease.

https://metro.co.uk/2019/11/09/from-stigma-to-addressing-invisible-illnesses-young-people-share-what-its-like-living-with-arthritis-11040563/amp/?__twitter_impression=true

Having been diagnosed with Juvenile Idiopathic Arthritis when I was 11 and told ‘you’ll probably grow out of it by the time you’re 16-18’ (only to go on and get AS at 14 and Psoriatic Arthritis in my 20’s) I could really relate to the stories the three ladies shared in the article. Back in the 90s progress was being made and biologics were talked about as this mythical thing 25-50 years down the line but the talks and support that were given to me and my parents were very much about preparing and adapting to living with what’s to come rather than how to fight it. I’m pleased to say I’m quite determined and continue to push the boundaries….especially if someone tells me I can’t do something! 😉

I recommend giving it a read and thank you to The Metro for raising awareness.

If you have a similar story you’d like to share on this site, then please get in touch. Joel.

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Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.

I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.

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