I am delighted to say that two more of my freelance parenting articles have been published this week. Both take a candid and unapologetic look at how my arthritis and pain impact my son and ability to parent.

This is a subject I am being asked to write more about each month and is becoming a bit of speciality for me. Is this something you’d like to see a dedicated category for on this website, similar to my Mental Health and Shielding series? So that you can find similar articles easily? Let me know in the comments.

Parenting in pain and what it can’t take away

Scope has published ‘Parenting in pain and what it can’t take away‘ on their ‘Guest Blog’ forum. To pique your interest, here’s an excerpt:

Parenting with a chronic health condition is challenging, especially one that tends to fluctuate like autoimmune disease where your body randomly and without warning attacks it’s own healthy tissue. One day you’re playing in the garden with your child, the next stuck in bed or on crutches wondering how on earth you are supposed to get them changed or up the stairs to bed.

The disease itself is an emotional rollercoaster, becoming a parent I suddenly wasn’t the only one riding the train. If I became sick on the ride, it impacted my wife and son too. Laying in bed on the bad days was no longer an option. It was a responsibility I found as claustrophobic and terrifying as I did an inspiration and my reason to go on.

It was liberating, but it also made me feel like I was in prison at the mercy of my disease. If I struggled, I could no longer rest, take sedating pain relief, afford to end up in the hospital for a week. It felt like after years of seeking assurances about the risk of transferring my disease before starting a family, that my son might as well have the same diagnosis given the impact my health has on him.

Finding a balance: Parenting, a pandemic and PsA

Secondly, psoriatic-arthritis.com has published my latest article, Finding a balance: Parenting, a pandemic and PsA, where I talk about the juggling act I faced during Covid lockdown and how I managed my condition, guilt and parenting when the world closed its doors to support.

You can find a snippet below.

The two months that followed, I can safely say were some of the darkest days of my life. Trying to change diapers while on crutches or catch and carry an 18-month-old around the house felt like climbing Everest. I hate that I counted down the hours to nap time so I could rest.

I cried in the bathroom numerous times a day, so he didn’t have to see it. Sometimes it was from the pain, more often than not, it was from the guilt. To make matters worse, when the day was over, and the safety blanket of my amazing wife returned home, I couldn’t sleep due to the same fears and excruciating pain from the day’s efforts. Most days, I was trying to function that way on 2-3 hours of sleep.

It was being a father that kept me going through those five months of shielding and social distancing. Without my son, I would have quit.

Watch this space

Like buses, I am informed I have more third party articles being published this week. One of which is for Psoriasis Awareness Week 2020 on how my skin condition impacts me. As always, I’ll link them on this site for your consumption.

If you’d like me to write for your publication or website, get in touch. I don’t charge for charities!

Website | + posts

Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.

I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.

Share This
%d bloggers like this: