I used to be fit, I used to be strong,
I used to be witty and happy; belong.
I used to be driven, oh, to be enthused,
I used to entertain and sing; amuse.
I used to be healthy, I used to have fun,
I used to compete, be agile and run.
I used to be busy, have so many friends,
I used to keep diaries, be cool, on trend.
Now I’m a shadow, a memory, a former me,
And the only proof is a photo, a story, an ‘I used to be…’.
Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.
I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.