I used to be fit, I used to be strong,

I used to be witty and happy; belong.

I used to be driven, oh, to be enthused,

I used to entertain and sing; amuse.

I used to be healthy, I used to have fun,

I used to compete, be agile and run.

I used to be busy, have so many friends,

I used to keep diaries, be cool, on trend.

Now I’m a shadow, a memory, a former me,

And the only proof is a photo, a story, an ‘I used to be…’.

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Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.

I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.

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