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For this episode of the Joel vs Arthritis podcast, we are joined by a very special guest, Rebecca Beesley of Juvenile Arthritis Research (JAR Project).
Talking about the incredible work this charity does, who’s vision is “a world where no child has to suffer from arthritis”, we discuss the impact of Juvenile Idiopathic Arthritis and why it doesn’t always get the attention and awareness it deserves.
We also turn our attention to WORD Day (World yOung Rheumatic Diseases Day), for which JAR Project and Joel are Ambassadors and talk about the importance of raising awareness and what both parties have planned for the big day on the 18th March.
Finally, please excuse the relatively low volume of my audio. I was suffering from a migraine on the day of recording and had to keep my voice low.
What is WORD Day?
“The ultimate aim of WORD Day is to raise the awareness and knowledge level of parents, doctors, primary practitioners, teachers, and the general public to help first and foremost in early diagnoses, and a quick referral to specialised pediatric rheumatologists.”
About WORD day – WORD day 2021
Recommended Reading:
The wider impact of Juvenile Arthritis – Joel vs Arthritis
Interview with Juvenile Arthritis Research published – Joel vs Arthritis
Links and More Info:
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Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.
I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.
