I have posted various photos on my Instagram over the last few months that have prompted questions about my daily arthritis routine. So I thought I would go into a bit more detail as to what that looks like. It should be noted at this point that I’m no saint here. I can’t tell you…
Category: My Story
Chronic illness – a setback bigger than the illness itself
You might think you are helping by taking things away from me but you’re not. You are further knocking the confidence of somebody who is already fragile from their chronic illness. An event happened to me today that reminded me of something worse than living with chronic illness itself. The issue of people thinking they…
Everything gets attributed to your autoimmune condition when you're sick
Living with an autoimmune disease isn’t easy. When your own body attacks itself, in my case, the fight can start anywhere. Over the years I’ve had it in my joints, liver, eyes, skin and muscle damage and depending on where it is, is what it’s called; arthritis, fatty liver, uveitis, psoriasis and myositis in the…
Blogging has become my new obsession
At first I wrote to vent, share experiences and help others – and those core drivers still apply. However, now there’s a new fire burning in my stomach over this project. A desire to improve, inspire and see how far I can take this. I didn’t realise when I was writing crappy lyrics and poems…
An upsetting post to write – an update from the Biologics appointment
This post is preceded by: Preparing for the Biologics appointment Trouble on the horizon Today was not a good day. As some of you know, I had my biologics review as it has been three months since the recommencement of Humira. You may also know that Humira has not really been working this time around,…
Affiliate programs and partners – ‘win-win’ or a blogging minefield?
The website and blog is growing – at a crazy rate. The last two weeks have brought double the visitors per week as the previous fortnight and it’s a trend that keeps repeating since the turn of the year. As with all things, this means in time the upkeep grows – whether that’s hosting, email…
Preparing for the Biologics appointment
Next week I have my first appointment with the Biologics team since the switchback to Humira. Usually a routine six-monthly check up but the significance of this one is that it’s three months since I restarted on Humira – and three months is the period in which you are told to expect to see a…
A break in the clouds – exciting times ahead
As reported on my Facebook page yesterday – you can find it here if you haven’t given it a like yet 😉 – I have some exciting news to tell you. I have my first published article going in the National Ankylosing Spondylitis Society (NASS) magazine shortly. It’s a more condensed version of what I…
Time to turn the corner – and I need your help!
It’s been a bit negative of late, hasn’t it? The poems, the lack of progress with my treatment. You can only write about what you know and at the minute it’s a bit of a sh*t sandwich but even the bread is mouldy. I started this blog to raise awareness, be positive and show what…
A thank you to those bloggers that have supported me to date
The blogging journey can be a stressful one. You have the initial start out period where you spend hours writing posts for hardly a single person to read them, then you gain a little traction and start to get likes and follows, then out of nowhere it goes quiet again and you start questioning everything…