At first I wrote to vent, share experiences and help others – and those core drivers still apply. However, now there’s a new fire burning in my stomach over this project. A desire to improve, inspire and see how far I can take this. I didn’t realise when I was writing crappy lyrics and poems as an angry teenager or when I was travelling around the country in a band as a young adult that I actually loved writing!

It didn’t ever cross my mind that this would be something I would develop a passion for, something that I would find addictive. The slight trepidation as you write, knowing that someone, even one person will be reading your deepest thoughts, feelings, fears. The thrill of the publish as you see if your hard work even registerers.

A like, a comment, a share…hooked.

Like an opioid reaching the brain, you’re buzzing. Amazed at the fact that somebody took the time to read your opinion, be moved by your story or relate to what you are saying. The idea of my words sparking an emotion in somebody enough for them to send me a message of support, cannons a shock of ambition deep inside of me that I never knew I had.

I used to look forward to playing computer games in my spare time now that I can no longer play guitar, sport, ride my bike; but now, I look forward to writing and tweaking my website, experimenting with what works and what doesn’t.

Perhaps nothing comes of this, maybe something does and if it does, there might be something positive arise from this whole mess of a situation.

If you read this, thank you.

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Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.

I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.

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