As some of you know, I’ve been experiencing some brand new symptoms of late that are really getting me down, multiple infections, crippling fatigue, all over joint pain and night sweats to name but a few.

After recently reading Lindsay Reid’s poetry based on her experiences living with Ankylosing Spondylitis (available here: it made me think about returning to an old hobby I used to have in my teenage years of writing poetry as a bit of an outlet. I warn you now however, I’ve had no education on writing so it’s rather crude.

 Heavy, I ache, 
My bones filled with lead.
My joints are exposed,
To the pain, I am broken.

One followed by another,
They charge, akin to waves.
Like Dunwich cliffs, I'm vulnerable,
Relentless barrage, from infection.

I dream although awake,
I stumble through the day.
The fog, it engulfs me,
Bathed in fatigue, I am broken.

My outlook, it is dimmed,
My patience, splinters thin.
It's no longer just about me,
A new generation, I must father.

Endless questions, never answered
Uncertainty for which I'm burdened.
I need a vacation from myself,
No relief, I am broken.

Give this a like or comment if it’s something you enjoy or would like to see more of on this blog.

Thanks, Joel.

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Arthritis and Psoriasis Patient Advocate, Writer And Consultant. Owner Of The Pain Company.

I share my story of Juvenile Idiopathic Arthritis to raise awareness and specialise in pain, parenting (with disability) and the mental health impact of living with chronic illness. I write and campaign for leading charities and organisations. In addition, I provide patient experience consultancy for both charities and global healthcare companies.

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